We are regularly out on the Web. When we find a great site we list it.
Patients and Parents´ associations.
Italian web site dedicated to interstitial lung disease.
- British Paediatric Orphan Lung Disease Registry
- ILD care
The aim of this foundation is to optimize the care of patients with interstitial lung diseases (ild), to broaden knowledge and to support research on the impact of ild on patients and their relatives.
- MAGI Foundation
The International Association of Medical Genetics “MAGI” is a non profit organization that particularly support researches in screening for mutations and analysis of gene expression in rare genetic diseases.
The PAP Foundation is a non-profit patient advocacy organization dedicated to finding a cure and to improving the lives of those affected by PAP.
General informations about PAP.
Medical Societies and Organizations
Medical Societies and Organizations all about PAP.
The portal for rare diseases and orphan drugs
The topics WASOG is focussing on interstitial and rare lung diseases.
Reference Centers and Experts
Reference centres for diagnosis and treatment of PAP in children and in adults all over the world.